Overview of the Big Data Working Group
Drs. Lindsay Shea & Emily Hotez
The AIR-P Big Data Working group focuses on utilizing survey, secondary, and administrative data to investigate and promote the physical health of Autistic individuals across the life course and the lifespan. The purpose of this working group is threefold: 1) To foster research collaborations across the AIR-P Steering Committee, ANSWER, Scholars, and the CREs; 2) To leverage the potential of new and innovative datasets and linkages in informing the field of autism and physical health; and 3) To facilitate collaborative, analytic, and methodological
advances and training opportunities for investigators.
Concerning workflow, an AIR-P researcher can submit an idea for a Big Data autism/physical health project to the working group, the working group will review and identify needed
resources, and the researcher & working group will collaborate on the analysis and resulting manuscript (with co-authorship established upfront).
Beyond this workstream, the Working Group will regularly discuss Big Data issues and emerging research, develop and lead webinars or training sessions, and/or operate in a consultancy capacity to support the AIR-P in leveraging the potential of Big Data.
Examples of Big Data sources include but are not limited to Medicare/Medicaid; National Autism Data; All Payer Claims Databases, Medical Expenditures Panel and other national Surveys; TriNetx; Kaiser, etc.
Interested in collaborating with the AIR-P Big Data Working Group?
Sign up to attend our quarterly office hours by e-mailing firstname.lastname@example.org with a brief overview of an autism & big data question or issue you would like to troubleshoot with us!
In your inquiry please include:
- Name, position/affiliation
- Research question (if applicable)
- Datasets using/interested in (if applicable)
- Overview of what you would like to discuss with the Big Data Working Group
Big Data Working Group ANSWER Reps
The AIR-P Big Data Working Group is seeking candidates for ANSWER representatives! Visit the ANSWER representatives page to learn more about the responsibilities of the role.