Resources for Improving Participatory Research

  • Dr. Elizabeth Pellicano’s article on improving participatory methods in autism research 
  • Sherry Arnstein’s ladder of citizen participation 
  • Academic Autism Spectrum Partnership in Research and Education (AASPIRE) guidelines for the inclusion of autistic co-researchers and study participants 
  • Autism in Adulthood’s guidelines to describe neurodivergent populations and/or populations with disabilities in academic writing 
  • The AIR-P network’s Autistic Researcher Review Board (ARRB) presentation on conducting quality participatory autism research, especially the following sections: 
    • 6:15 to 27:20 - Neurodiversity, Language and Models of Disability 
    • 27:20 to 34:45 - Perspectives of Autistic Adults on Participatory Autism Research
    • 34:45 to 1:00:04 - AASPIRE Guidelines for the inclusion of autistic adults as collaborators in autism research 

Researcher Resources

Explore researcher toolkits, guidelines, and dissemination activities, prepared by the AIR-P network.