Archived Webinars

There are few specialists that serve adults with Neurodevelopmental Disabilities (NDD), and most adults with NDD receive care from providers without specialty training in NDD. Care for this population is highly variable, and patient and caregiver priorities in this age group are not well known. We aimed to explore individual and caregiver values around adult neurodevelopmental care. In this qualitative study, we conducted 22 semi-structured virtual interviews from September 2021 to February 2022 with randomly selected adults with NDD and/or their caregivers. The need for adult neurodevelopmental care is growing as more individuals with NDD are living into adulthood. Better understanding of patient and caregiver values can help shape this emerging field to meet the needs of this unique, often overlooked and underserved, population.

Participants will also engage in brainstorming sessions to develop additional simple yet impactful neurodiversity-affirming strategies that could be applied in similar situations in the future.

his interactive webinar will focus on practical, neurodiversity-affirming approaches in medical settings that are both cost-effective and time-efficient. Join four autistic members from the Autism Intervention Research Network on Physical Health (AIR-P) Autistic and Neurodivergent Scholars Working for Equity in Research (ANSWER)  as they share their personal experiences with medical care. They will highlight the profound impacts of neuro-affirming and non-neuro-affirming practices they encountered, providing valuable insights for clinicians.

Participants will also engage in brainstorming sessions to develop additional simple yet impactful neurodiversity-affirming strategies that could be applied in similar situations in the future.

This webinar will provide an overview of a participatory project in which a team of Autistic and non-Autistic collaborators created and delivered an adaptable, multi-modal research training curriculum for Autistic Adults to build capacity for inclusion in research, and to build transferrable skills like teamwork, consensus-oriented decision making, and effective communication. The trainees participated in focus groups to set a research agenda on gender and sexuality.

Presentation slides and resources available here.

This webinar will provide an overview of the intersection between two initiatives funded by the Health Resources and Services Administration (HRSA): The Autism Intervention Research Network on Physical Health (AIR-P) and The Leadership Education in Neurodevelopmental and Other Related Disabilities (LEND) Program. Panelists will describe how they leverage the AIR-P to further the mission of the LEND program. They will discuss successful research projects their trainees have worked on that align with the goals of these programs. Panelists will also discuss challenges with instituting collaborative research and training projects and potential strategies for addressing these challenges. Finally, they will discuss ongoing work within the AIR-P LEND committee.

Presentation slides and resources available here.

This webinar will provide an overview of facilitators and barriers to participating in physical activity for autistic adults. Attendees will learn of new approaches to supporting inclusive physical activity with community partners. There will also be time for questions and answers. 

Presentation slides and resources available here.

This webinar will provide an overview of research strategies and outcomes at the Alyssa Burnett Adult Life Center. Attendees will learn of new approaches to inclusive research, and research design and outcomes for ongoing research and quality improvement projects. There will also be time for questions and answers. 

Presentation slides and resources available here.

This webinar, offered by the Autistic Self Advocacy Network in partnership with the Autism Intervention Research Network on Physical Health (AIR-P), will provide an overview of plain language writing for people who may be more used to writing in academic language. Attendees will learn the principles of plain language writing and have a chance to put them into practice with interactive exercises. 

Presentation slides and resources available here: https://drive.google.com/drive/folder...

In this webinar, the research team tells the story of a community-engaged, academic-industry partnership to create online video libraries for autistic young adults and parents of autistic youth. Our first collaboration was a video library presenting short, 2 minute “Microskills” videos to help parents gain the skills needed to talk to autistic youth about sexual and reproductive health and relationships. Building on the success of that project, our second project is an online video library for autistic young adults interested in enhancing skills in relationships, employment, self-advocacy, and more – all areas that our advisory group of autistic young people requested. We will describe how we collaboratively designed the scripts with autistic people and parents, hire autistic actors for our videos, and plan to evaluate the programs via innovative methods such as conversational coding and roleplays. Join the conversation about community-engaged research, sexuality, and academic-industry-partnerships for enhancing health among autistic people across the lifespan.

This webinar-- sponsored by the Autism Intervention Research Network on Physical Health (AIR-P) -- will focus on: The intersection of race and ASD. The webinar will include a presentation by Dr. Sophie Molholm on the findings from a multisite study on autism in African Americans focused on increasing diversity in genetics studies and understanding reasons for later age of diagnosis in this group as well as a collaborative discussion led by Dr. Lisa Shulman, a clinical leader of a large, diverse inner-city Developmental Center in concert with a parent of children with ASD and an Autistic Adult on practical strategies for supporting a diverse ASD population and their families in accessing diagnosis, therapeutic and medical services, and encouraging participation in research. Presentation slides and resources available here

This webinar-- sponsored by the Autism Intervention Research Network on Physical Health (AIR-P)-- will feature a collaborative discussion and brainstorming session hosted by the AIR-P Big Data Working Group, a newly formed interdisciplinary committee focused on using large datasets to improve equity and health for autistic individuals. This discussion will include insights from AIR-P research node leaders regarding the highest priority areas for big data work in autism as well as discussions on key issues in big data (e.g., participatory approaches, real-world implications, and others).

Presentation slides and resources available here