If you missed any of our web events, they may be found below, or you can visit our YouTube page for all AIR-P related videos.
This webinar-- sponsored by the Autism Intervention Research Network on Physical Health (AIR-P) -- will focus on: The intersection of race and ASD. The webinar will include a presentation by Dr. Sophie Molholm on the findings from a multisite study on autism in African Americans focused on increasing diversity in genetics studies and understanding reasons for later age of diagnosis in this group as well as a collaborative discussion led by Dr. Lisa Shulman, a clinical leader of a large, diverse inner-city Developmental Center in concert with a parent of children with ASD and an Autistic Adult on practical strategies for supporting a diverse ASD population and their families in accessing diagnosis, therapeutic and medical services, and encouraging participation in research. Presentation slides and resources available here
This webinar-- sponsored by the Autism Intervention Research Network on Physical Health (AIR-P)-- will feature a collaborative discussion and brainstorming session hosted by the AIR-P Big Data Working Group, a newly formed interdisciplinary committee focused on using large datasets to improve equity and health for autistic individuals. This discussion will include insights from AIR-P research node leaders regarding the highest priority areas for big data work in autism as well as discussions on key issues in big data (e.g., participatory approaches, real-world implications, and others).
December 12, 2023
Health Outcomes for Sexually-diverse and Gender-diverse Autistic Adults
We know that a substantial number of autistic people are sexually-diverse (e.g., gay, lesbian, bisexual, pansexual, asexual) or gender-diverse (e.g., transgender, gender non-conforming), but what do we know about their mental and physical health? Dr. Graham Holmes will discuss the current state of the literature and present findings from two studies that used innovative methods to learn about health disparities for this population. The first study investigated suicidality disparities among autistic versus non-autistic sexually-diverse and gender-diverse youth using a U.S. national sample recruited via social media. The second study investigated mental and physical health disparities more broadly among autistic sexually-diverse and gender-diverse adults versus cisgender heterosexual adults using electronic health record data. Clinical implications will be discussed.
This webinar focuses on the methods and preliminary results of a qualitative, community-engaged study with queer and transgender autistic adults. We chart how we partnered with 19 community organizations working with this population to conduct open-ended, in-depth interviews with 65 adults in the Philadelphia area. Preliminary findings address nonbinary identity, self reported autism, health and wellbeing, community engagement, and social support. We use these findings to structure autistic-led programming for autistic adults to improve wellbeing.
While most medical students report that they want to learn more about seeing patients with intellectual and developmental disabilities (IDD) and feel underprepared to serve these patients when they graduate from their programs, the actual amount and quality of IDD-focused curricular content in medical and dental school curricula greatly varies between institutions. This webinar will present data from a recent WITH-funded research project examining the development of inclusive IDD curricula at medical and dental schools, and will also introduce an AADMD initiative, NICHE medical, that coordinates and supports medical schools who are working to develop innovative, community-engaged IDD curricula.
This webinar will explore findings from the latest National Autism Indicators Report (NAIR) focused on health care in autistic people during the COVID-19 pandemic. This report examines the impact of the COVID-19 pandemic on health and health care among autistic children and adults. To build a comprehensive picture, we included various data sources.
Dr. Rujuta Bhatt Wilson will share Neurology Node Updates from the AIR-P project. The webinar will include updates on intervention studies, examining neurologic conditions in genetic Neurodevelopmental syndromes, and examination of the prevalence of co-occurring neurologic and neurodegenerative diseases in autism in adulthood.
Dr. Samantha Ross will share updates on a current AIR-P Scholars Project that has engaged autistic youth and their parents as stakeholders to evaluate the construct validity of flourishing items within the National Survey of Children's Health. Some researchers consider children to be “flourishing” when they have positive relationships with peers and family, are motivated in school, and show curiosity for new things. We conducted cognitive interviews to better understand how autistic youth and parents make meaning of a 10-item Flourishing Item Set and the relevance of these items to their lived experiences. Dr. Ross will discuss preliminary findings from cognitive interviews in the context of related research highlighting concerns of measurement bias. She will further share ongoing efforts by the research team to engage stakeholders in revisions to the survey item set, and co-production of 'flourishing conversation toolkit', to enhance the applicability of this measurement tool among autistic youth.
Equitable and just genetic research requires an examination of the ethical questions pertaining to marginalized communities. Many have expressed concerns over current practices of autism-related genetic research, urging the field to shift towards practices that ensure benefits and protect against harm. As an interdisciplinary working group of autistic and non-autistic individuals, we have developed guidelines for leveraging genetics to enhance the quality of life, health, and autonomy of autistic persons.
An estimated 50–70% of autistic people experience clinically significant sound sensitivity at some point in their lives, and for many adults on the autism spectrum, difficulties tolerating everyday sounds remains a substantial problem. In this webinar, Zack Williams will discuss the different types of sound sensitivity that exist in autistic people and present new research findings on the manifestations, clinical correlates, and neural/perceptual underpinnings of these sometimes-debilitating conditions.
April 18, 2023 (Rescheduled to June 27)
Mind the NIH-Funding Gap: Structural Discrimination in Physical Health-Related Research for Cognitively Able Autistic Adults
Importance of addressing physical health disparity conditions in autistic adults Structural discrimination in NIH-funded studies on physical health disparity conditions in autistic adults Description of conflicts of interest within an NIH-funded culture of academia that contribute to systemic structural discrimination in funding policies This webinar is supported by data in McDonald and Scudder's (2023) article and can be read here.
Gastrointestinal (GI) symptoms are prevalent in autistic individuals, but little is known about them in autistic adults. "G.I Wanna Talk About Autism" is a mixed-methods, participatory research study with the goal of 1) describing the lived experiences of autistic adults with GI symptoms, and 2) developing recommendations to improve the GI health of this population. Join this webinar to learn about the study's activities and preliminary findings. The goal of this mixed-methods study, titled “GI Wanna Talk About Autism” is to describe the lived experiences of autistic adults with GI symptoms and develop recommendations to improve the GI health of this population. This study adopts a participatory approach in which a Community Board of autistic and non-autistic adults with diverse professional and lived experiences contributed to the study design, analysis, interpretation, and dissemination of findings.
The Autism Society of America's Vaccine Education Initiative has increased vaccine education, confidence, and accessibility throughout the Autism community. Join this discussion on health equity to learn about grassroots messaging, key lessons learned, evidence-based practices, and opportunities for community impact.
Big data can provide population-level indicators for autism research focused on physical health. Claims data are a useful big data tool that emerge from health systems and provide translational research opportunities to improve health outcomes across large groups and communities. Claims data are generated at local, state, and federal levels, and from multiple insurance sources. In this webinar, we will describe existing approaches to the use of claims data for autism research focused on physical health and present and discuss opportunities for future research.
Previous Year Archives
February - How can we use an understanding of the neurodiversity movement to develop socially valid supports for autistic people? - Patrick Dwyer, *PhD Candidate, Erin McKenney, Bella Kofner, Sergey Shevshuck-Hill, Dr. Kristen GIllespie-Lynch
August - Involving Community Partners in Autism Research - Dr. Lisa Croen and Dr. Maria Massolo
September - Sensory Inclusive Clinical Spaces: Guidance for Providers - Dr. Denise Nunez
December - Environmental Health and Gene-Environment in Relation to Autism- Dr. Heather Volk
August - Addressing Reproductive Health and Obstetrics/Gynecology Health Care in Autistic Adults - Dr. Jennifer Ames
November - Utilizing a Cross-system Framework to Guide Research on Autism and Criminal Justice Intersections: Implications for Physical Health Outcomes - Dr. Lindsay Shea, Dylan Cooper, Dr. Amy Wilson
December - What's Medicaid Got to Do with It? National Research and State Innovation to Improve Health Outcomes. - Lindsay Shea, DrPH, MS, Stacy Nonnemacher, PhD
Webinars by Research Node
- Lifestyle Interventions
- Priority Setting to Improve Health Outcomes: Autistic Adults and Other Stakeholders Engage Together
- The Role of Minority Stress for Autistic People's Health
- Standing desks, rocking chairs and bouncy balls...in school?! Evaluating the use of flexible seating for neurotypical and neurodivergent children
- The National Autism Indicators Report on Health and Health Care
- Using Autism Research to Inform Policy: Successes, Lessons, and Challenges
- Utilizing a Cross-system Framework to Guide Research on Autism and Criminal Justice Intersections: Implications for Physical Health Outcomes
- What's Medicaid Got to Do with It? National Research and State Innovation to Improve Health Outcomes
- Claims Data as a Big Data Tool for Autism Research Focused on Physical Health
- Mind the NIH-Funding Gap: Structural Discrimination in Physical Health-Related Research for Cognitively Able Autistic Adults
- Health of Autistic People During the COVID-19 Pandemic: National Autism Indicators Report Findings
- Conducting Quality Participatory Autism Research
- Epilepsy in Autism
- Bolstering Autistic College Students' Mental Health and Wellness
- How can we use an understanding of the neurodiversity movement to develop socially valid supports for autistic people?
- Involving Community Partners in Autism Research
- The Role of Minority Stress for Autistic People's Health
- Preliminary Findings from GI Wanna Talk about Autism - A Mixed-Methods, Participatory Study of Gastrointestinal Symptoms in Autistic Adults
- IDD Curricula in the Health Professions: Current State and Future Directions
Racial and ethnic differences in psychiatric and medical diagnoses among autistic adults - Jennifer L. Ames, Yinge Qian, Maria Massolo, Lisa A. Croen
Project ECHO Autism WA - Bravo, A., Gerdts, J., Mannheim, J., Mutti-Driscoll, C., Mancini, J., & Stobbe, G.
Project ECHO™: Building Primary Care Capacity for Autism Diagnosis and Care
Earlier Identification of Autism in Toddlers with the Rapid Interactive Screening Test for Autism in Toddlers (RITA-T) - Kerri L. Staples & Leah R. Ketcheson
Sleep health among Autistic students in higher educational institutions - Khosla, P., MPH, Ph.D., Edgin, J.O., Ph.D., & Parent-Johnson, W., Ph.D